Trinity’s journey has been a difficult one during her first eleven years. After discovering that she has a very rare, blinding disease called Familial Exudative Vitreoretinopathy (FEVR), Trinity has already had numerous surgeries and dozens of trips to specialists in Detroit and the Cleveland Clinic.
Through most of this journey, Trinity has smiled, laughed and warmed the hearts of all who get to know her.
FEVR is a rare genetic disease that is believed to impact just 1 in every 90,000 births. With so few suffering from this impairing disease, research and development dollars are difficult to come by.